We are beyond thrilled to announce this recipient of a 2017 makeover! This huggable gent is seven year old Eli. This beautiful picture captures the essence of Eli fully sweet, warm and full of giggles. His journey through infancy to childhood has been challenging, but he is a survivor and he's never giving up!
Eli entered the world early at 35 weeks gestation and weighed only three pounds. Although he was diagnosed with a cardiac condition called Tricuspid Valve Regurgitation during the pregnancy, soon after birth doctors discovered he also had a dangerously low platelet count. He spent his first two months in the NICU enduring numerous tests and a surgery for PDA ligation. He had an enlarged liver and spleen as well as continued to have acute thrombocytopenia (low platelet count). Doctors still had no answer as to why this was happening when he went home for the first time at 8 weeks of age. In fact, his diagnosis of Aicardi-Goutieres Syndrome was not confirmed until 2015, after spending years in and out of the hospital.
In May 2015, Eli started a Compassionate Care trial through Dr. Vandeerver at Children's National in Washington DC, the same physician that discovered his diagnosis. The trial aims to improve Eli's quality of life, although it can not reverse the effects the disease has had. He is one of only four children that are fortunate enough to be on this trial in the United States.
Sunshine on a Ranney Day will be rewarding Eli with a dream makeover that will renovate his bedroom and bathroom. We want to see the the light in his eyes shine bright as he enjoys cuddle and play time with his family in his new room. We hope you will join us at the big reveal coming soon!