56

#

Eli

6

Age:

Dream Bedroom, Accessible Bathroom

Aicardi Goutieres Syndrome Type 7

Welcome to Eli's personal Hundred Acre Woods! Eli's reveal on April 1st wasn't fooling anyone, it was a wonderful, genuine surprise to Eli, his parents, and all who were in attendance. The incredible mural that spanned all of the walls in Eli's new room were surely a talking piece for everyone. Eli's mom remarked that his head control for looking around at all his favorite characters was very strong! Eli's mom shed tears of happiness when she opened the door to Eli's new wheelchair accessible bathroom as she breathed the words of relief "we don't have to lift him anymore!" It's reactions like that from parents and the bright, inspiring smiles on the faces of kids like Eli that encourage us to keep doing what we're doing. In true Filipino fashion, Eli's parents and friends and family all came together for the reveal and shared in some terrific traditional Filipino dishes. All our bellies were full with lumpia and pancit! We have received updates via text message from Cristina, Eli's mom, every day since the reveal about how much Eli enjoys his new shower and has yet to sleep in his room because he is just too excited to be there. “How do you spell 'love'?" - Piglet "You don't spell it...you feel it." - Pooh”, well, we certainly feel the love with Eli and his family! 2017 Matthew Sunshine on a Ranney Day strives to restore hope to the lives of children and families who are experiencing serious illnesses. This stunning young fellow is a 16-year old high school sophomore with a passion for basketball, his family and his friends. Matthew plays for the Etowah High School Basketball team and is a member of a distinguished leadership club known as Flight Club. He is well respected and humble with the goal of increasing awareness and prevention of childhood cancer. Matthew recently endured an 18-hour surgery to remove a cancerous tumor from his jaw. This painstaking surgery, performed by a team of surgeons, repaired his jaw with a section of his fibula and required a ten-day hospital stay. The journey towards the devastating diagnosis of this malignant mass began after his mom noticed that he had a swollen jaw following a basketball game. At the time, nothing significant was found; physicians thought it was a swollen gland. It was only when a routine dental x-ray revealed a tooth growing in his jaw that doctors became suspicious. A follow up visit to an oral surgeon lead to the discovery that the tooth was embedded in a mass within his jaw and had to be extracted. His six-month recovery period will include on-going physical therapy and speech therapy. He is currently required to eat a modified soft diet and consume alkaline water. These services and his medical expenses are adding up and he requires around the clock care from his mother who is taking a leave of absence to help him recover. Matthew’s mother is a single mom and has exhausted her resources at this time. Sunshine on a Ranney Day created an inspiring and stimulating bedroom showcasing his favorite things which have a positive impact on his recovery. Renovation, rest, and remission are just what the doctor ordered, and he got just that!

Family Photos

Photography by Kellie Signature Photography

Before Sunshine

Photography by Niki Murphy Photography

After Sunshine

Photography by Niki Murphy Photography

We Love our Sponsors

Photography by Niki Murphy Photography